Monday, May 23, 2011

On the Pills

After two days of sleeping 20 hours each day and several more days with extended (3-4 hour) mid-day naps, I'm starting to feel more like myself. (Must say I would be rather more distressed should I start feeling like someone else, but that's a different matter.) Having been reminded by the oncologist that side effects of Capecitabine and Lapatinib are cumulative, mid-day naps will be a regular thing for me from now on. If they don't produce the much-sought-after beautifying results, there is always the hope that regular naps will help reduce the chance of another attack on some poor innocent. Am currently attempting to make peace with my inner hellcat and once again look on blister-packed pills as my friends, although sometimes I seriously wonder about the latter part of that statement. In case you, gentle reader, have ever wondered what my pharmacy order looks like, here's a glimpse at my med supply for a three-week period. Several more blister packs of Lapatinib (the bigger pill) are inside the box. Note painkillers, anti-depressants, antacids, anti-nausea meds,  Magic Mouthwash, and various creams were not included in this photo.



Must say I was a bit taken aback when I first say the warning labels on the bag. Now, it's pretty much old hat.

Wish I could include a photo of the nifty horsetail salve several members of the local spinners/weavers guild brewed up for me, but it kinda looks like sludgy tea so not much to photograph. Heated up the brown slightly viscus liquid and soaked my feet and hands before heading to bed. A noticeable change in the condition of my skin after the first soaking. Have also found it to be effective re calming the inflammation and rash on my inner arm - a side effect from the last infusion of CT contrast fluid. Many, many thanks to all who collected horsetails on my behalf and to Penny who took on the chore of stewing up the brew. If the guild is ever in need of a fund-raising idea, suggest you bottle some and sell to others with irritable skin conditions.

Wednesday, May 18, 2011

A Crack in the Delicate Veneer of My Life

The reality of my own situation seems to have suddenly hit me. Had a meltdown yesterday while waiting for my meds at the Cancer Agency. The trigger was a delay in getting the prescription filled (I've been kept waiting between 2 and 4 hours each time I go to get the drugs - yesterday I waited nearly 3 hours because the pharmacist-in-training filled the order incorrectly and had to start all over again - twice - which also meant checking over my lab results to ensure proper dosage was given and filling out the various trial/study forms each time). While the delay was frustrating, I can't believe it was the sole reason for my going into a full-tilt rage and subsequent sob-fest. I'm made an appointment to see one of the Cancer Agency's counsellors and have also made an appointment with my psychiatrist. Can't believe that after four years of dealing with the day-to-day crap of the disease I'm suddenly upset. Don't worry. I have the good sense to get the help I need. One fleeting thought of suicide is more than enough for one life-time, thank you very much.

On a happier note, got the latest CT scan results yesterday. While there is MINOR spread, there is also a slight reduction in the size of some of the pre-existing lesions. On the main, the oncologist considers it to be an "unchanged" reading. Which is very good.

Also learned that I will be seeing the oncologist every three weeks for the rest of the time I am on these drugs. For some reason thought I wouldn't have to do that after the summer. This will have an effect on any future travel plans, but I'm sure I can adapt.

I'll share photos and stories from my last couple of weeks - when I enjoyed the company of Dan and later Trudy - in a few days.